Your Voice in Research

Current opportunities to share your experiences and improve patient care

We believe that the most meaningful research starts with you. Your personal experiences are incredibly valuable, and we are committed to making sure the diverse voices of our community are reflected in research. Below, you will find a wide variety of ways to get involved - from taking quick surveys to joining longer-term discussion groups. Whatever your background, and however much time you have to spare, there is an opportunity for you to help shape the future of patient care.

19th Feb Ends: Sat 11th April

Using electronic health records to study metastatic breast cancer

My name is Mel de Lange and I am a researcher at the University of Bristol. My job is to study health data from GP practices, hospitals and cancer records to help improve healthcare. After my sister was diagnosed with metastatic breast cancer in 2016 I retrained in health research and now want to do research that will help metastatic breast cancer patients. Your feedback on my research ideas will help ensure future studies focus on the issues that matter most to people living with metastatic breast cancer.

19th Feb Ends: Thu 30th April

My Life, My Way

Our Breast Cancer Awareness Month campaign for October 2026 is called: My Life, My Way.
Our campaign will celebrate the stories of how life continues beyond a secondary (metastatic) breast cancer diagnosis - in own terms and in ways that change over time.
In order to understand what it means to 'live well' with secondary breast cancer, we'd really appreciate you completing our questionnaire so that we can understand the many different viewpoints.

18th Mar Ends: Thu 30th April

CSF-Match: Study looking for better treatments for leptomeningeal disease (LMD) using spinal fluid

We are in the process of submitting a request to Cancer Research UK for funding for a study looking at leptomeningeal disease. At the Summit, we were grateful for your feedback and support. Your views will be made known to the committee who will review the application. As a study team we are very keen to remain engaged and connected with the secondary breast cancer community around this study, and to keep you updated on the progress. Register for the mailing list to be kept informed.

7th Apr Ends: Fri 17th April

Exploring autistic and non-autistic experiences of breast cancer

We are recruiting participants for an online survey to explore autistic and non-autistic people’s experiences of breast cancer diagnosis and treatment in the UK. Part of the Autistic Experiences of Breast Cancer research project, funded by Breast Cancer Now. Our survey questions were designed with our Lived Experience Advisory Group.