Giving hope to those affected
by secondary breast cancer

Your Voice in Research

Current opportunities to share your experiences and improve patient care

We believe that the most meaningful research starts with you. Your personal experiences are incredibly valuable, and we are committed to making sure the diverse voices of our community are reflected in research. Below, you will find a wide variety of ways to get involved - from taking quick surveys to joining longer-term discussion groups. Whatever your background, and however much time you have to spare, there is an opportunity for you to help shape the future of patient care.

Research teams may submit a request to include a study on our research board using this form.

9th Oct Ends: Mon 31st May

UnityBC Understanding inequities in breast cancer

UnityBC (Understanding Inequities in Breast Cancer) is a new national research study funded by Cancer Research UK.

UnityBC is investigating why experiences and outcomes from breast cancer differ between women from various ethnic backgrounds, including those from White backgrounds, in the UK.

UnityBC is open to all women aged 18 and over who have been diagnosed with breast cancer within the previous 13 months and live in the UK. UnityBC is run entirely online and women self-refer to join the study through our website.

9th Oct Ends: Fri 30th April

Opportunity to participate in the ESTABLISH trial examining a new insomnia treatment for people living with secondary breast cancer.

Researchers at the University of Strathclyde are looking for people with secondary breast cancer to take part in a study exploring two different treatments to improve sleep (no medication involved). Those who take part will be randomly assigned to one of two sleep treatments. One involves five weekly group sessions with a trained researcher, while the other involves working through sleep resources independently over five weeks. Participants will also complete questionnaires, keep a sleep diary and wear a small wrist-worn activity watch. The study will help us understand which approaches are helpful for people experiencing sleep problems and may lead to improvements in sleep, mental health and quality of life.

2nd Nov Ends: Mon 3rd May

Exploring the impact of healthcare communication on the lived experience of women living with secondary breast cancer

This (PhD) research study aims to explore how healthcare communication influences the experiences of women living with metastatic (secondary) breast cancer. Communication with healthcare professionals is central to understanding diagnosis, treatment options, prognosis, and ongoing support. Women with lived experience are invited to join an advisory group to help shape the research by contributing to the development of interview guides, study materials, communication tools, and resources for healthcare professionals. Their input will help ensure the research remains relevant, appropriate, and responsive to the needs and priorities of women living with metastatic breast cancer. The findings will support improvements in communication and person-centred care.