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LIMBER Survey Infographic Make 2nds Count is proud to share an infographic detailing some of the preliminary results from a UK survey that measured informational needs & quality of life in women Living with Metastatic Breast CancER (the LIMBER study). In the summer of 2021 Make 2nds Count awarded a 1-year grant to the Sussex Health Outcomes, Research & Education in Cancer (SHORE-C) group who conduct research in psychosocial oncology at the Brighton and Sussex Medical School to conduct the LIMBER study.

SBC & My Treatment: How Does Secondary Breast Cancer affect your life? It’s always there in the back of your mind or the front.

SBC & Me: Date of Diagnosis 31st January 2013 Current Treatment Line Capecitabine and Denusomab How does secondary breast cancer affect your life? In lots of ways my cancer journey has enriched my life, making sure I enjoy and savour every moment with my incredible family and friends.

We are delighted that on October 10th 2022 the Scottish Medicine Consortium (SMC) announced a decision to approve a new medicine that will be made available in NHS Scotland for certain patients with advanced or secondary Triple Negative Breast Cancer (TNBC). Pembrolizumab, also known under the brand name Keytruda®, is an immunotherapy drug for the treatment of patients with TNBC.

SBC & Me: Date of Diagnosis August 2021 Current Treatment Line Docetaxel, Trastuzumab and Pertuzumab and Denosumab. How does secondary breast cancer affect your life?

Make 2nds Count is sad to announce that its founders, Lisa and Euan Fleming, have decided to step away from future involvement with the charity. Since resigning from the board in May 2022, Lisa and Euan have been in conversation with the Board of Trustees about stepping back from their roles permanently and have now decided that they no longer wish to continue as ambassadors.

Has your treatment line changed since you completed SBC & Me last year? Yes How many changes to treatment have you had?

When were you diagnosed with secondary breast cancer? Jan 2019 What type do you have?

Today I want to share with you a story about one of our supporters, Kimberly & her husband Sean. Kimberly was diagnosed with primary Triple negative breast cancer in October 2018 when she was 40 years old.

Exemestane is a type of hormone therapy drug. You might have it as a treatment for breast cancer after you have had the menopause.

Anastrozole is a type of hormone therapy. It is a treatment for breast cancer that is hormone sensitive.

When were you diagnosed with secondary breast cancer? I was diagnosed with secondary breast cancer on the 13th June 2022 in my brain following a seizure whilst out running.

What is Letrozole Letrozole is a hormonal therapy drug used to treat breast cancer in women who have been through the menopause. Sometimes it is used to treat breast cancer in men.

Has your treatment line changed since you completed SBC & Me last year? I am still on the same treatment of Letrozole.

Fulvestrant “the final overall survival results of the phase III SWOG S0226 trial show that the addition of first-line fulvestrant to anastrozole was associated with improved overall survival in postmenopausal women with hormone receptor–positive metastatic breast cancer.” https://ascopost.com/issues/may-25-2019/fulvestrantanastrozole-in-metastatic-breast-cancer/ What is Fulvestrant? Fulvestrant is a hormone treatment for post menopausal women with locally advanced or advanced breast cancer.